Websites, Apps, Books and Podcasts
Pain Management Websites and Organisations
Footsteps Festival 2021
Welcome to Footsteps Festival 2021, a year-long celebration of living well with pain. Developed by people who live with pain and professionals in pain management, Footsteps Festival takes a creative approach to living well with persistent pain.
Flippin Pain
NHS funded information programme all about chronic pain. They host regular pain education events. Many resources provided here. See website.
My Live Well With Pain
Popular, highly regarded website providing pain management tools. Hosts the Footsteps Festival webpage. Free content.
ESCAPE-pain stands for Enabling Self-management and Coping with Arthritic Pain using Exercise. It is an evidence-based, cost effective, group rehabilitation programme for people with chronic joint pain, that integrates educational self-management and coping strategies with an exercise regimen individualised for each participant.
Online Version
Pain Toolkit
Pain Toolkit is a popular and highly regarded pain management website. Payment required.
Le Pub Scientifique
Pub Scientifique connects clinicians and people in pain to the latest science, research and treatments through live learning events.
Leva Clinic
A paid for online pain clinic and pain app. Members of the group have given feedback on their services and been offered free access to the app to test it. Most of us who have engaged with it report having a positive experience. More here.
Pain Concern
UK charity which focuses on:
Producing information on pain using a variety of media platforms
Providing support to people with pain and those who care for them
Raising awareness about pain and campaigning to improve the provision of pain management services.
​Leaflet. Quarterly Magazine – Pain Matters. Podcast
Pain and Rehabilitation, Journal of the Pain Physiotherapy Association
The PPA is the professional body of specialist pain physiotherapists. Their journal, Pain and Rehabilitation is open source and available here.
Online Groups
Community groups providing support and information for people with chronic pain
Supported Self Management
A private Facebook group for people with chronic pain to support each other and provide advice and tips on living with chronic pain.
Narrative Medicine & Pain Care
This group provides a safe space to share stories about living with chronic pain. For patients, activists, clinicians and educators.
Fibromyalgia Friends Together
Website for this support group for fibromyalgia sufferers. On this website you will find information on Fibromyalgia, its treatments, what we are doing to raise money for the condition, it sufferers and carers and how we support each other.
Books
Authors and titles recommended by group members
Living Beyond Your Pain:
Using Acceptance and Commitment Therapy to Ease Chronic Pain
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Joanne Caroline Dahl, Illustrated 2006
This easy-to-follow workbook was recommended by one of the senior pain management physios at the Camden pain management clinic, so is well worth checking out if you are interested in knowing more about Acceptance and Commitment techniques for chronic pain.
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Lorimer Moseley, David Butler
Solid evidence now shows that knowing why we hurt will help us heal. Explain Pain is a manual for clinicians, a workbook for patients and an educational tool to help manage and treat pain.
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Irene Tracey 2020
- What is pain and can we measure it?
- What is chronic pain and can we treat it?
- Can we make pain pleasant?
UNDERSTAND the causes and the reasons for pain. This complex, subjective but vital perception is experienced by the entire animal kingdom. We may not enjoy feeling it, but living without pain would be dangerous - it is our body's way of telling us when something isn't right.
YOUR BODY'S BUILT IN ALARM SYSTEM
Written by Professor of Anaesthetic Neuroscience at the University of Oxford, Irene Tracey, PAIN is an accessible and fascinating illustrated introduction to one of our body's most important sensory and emotional experiences.
Jon Kabat-Zinn
"Stress. It can sap our energy, undermine our health and even shorten our lives. It makes us more vulnerable to anxiety and depression, disconnection and disease. Based on Jon Kabat-Zinn's renowned mindfulness-based stress reduction programme, this classic, ground-breaking work which gave rise to a whole new field in medicine and psychology - shows you how to use medically proven mind-body approaches derived from meditation and yoga to counteract stress, establish greater balance of body and mind, and stimulate well-being and healing. By engaging in these mindfulness practices and integrating them into your life from moment to moment and from day to day, you can learn to manage chronic pain, promote optimal healing, reduce anxiety and feelings of panic, and improve the overall quality of your life, relationships, and social networks."
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Apps
Self-management and exercise for pain. See Pain Management Websites section above for more detail.
Curable
Curable A commercial, American app for managing chronic pain. Used and found to be effective by several of the CamPain network.
Paid for mindfulness meditation app with some free content
Podcasts
Pain management podcasts
The Rest Room
This podcast about movement and exercise with chronic pain is recommended by Diarmuid Denneny, senior pain physio at UCLH Pain Centre.
Oxford academic specialising in pain, particularly use of imaging technology to study pain. Produces a series of podcasts about pain.
Pain Concern Podcast – Airing Pain
"Our podcast Airing Pain brings together people with chronic pain and top specialists to talk about the resources which can help.
Informed by patients, healthcare professionals & internationally recognised experts."